Everyday Life With ALS
by Robin Ashley (a work in progress)
My intent for this series of short film clips is to show-- for caregivers, recently diagnosed patients, families and friends -- what its like have and live with ALS. Many of these clips show me in some very humorous positions, which might cause some to wince or chuckle. Believe me, wincing and chuckling is part of the ALS journey.
YNN
Special on ALS (3 minutes)
An interview with Robin Ashley and Kim Millett with an focus
on how Robin communicates using the vocal-eyes board and ERICKA.
Taking
a Bath (1 minute)
This is Kim, Krystal and Leslee giving me my bath. I get pretty ripe by bath
day, which only comes twice a week, Tuesdays and Fridays. I am particularly
sensitive to smell, always have been. Believe me, I am really itching to get
in the tub by bath day! The sling has been causing me some shoulder pain lately,
because of my old injury from the stand assist. I owe my life to my sweet wife,
Kim, without whom I couldn't survive. Kim usually takes the lead.
Communicating by Vocal Eyesing (7 minutes)
From
Bed to Wheelchair (8 minutes)
My wife Kim shows my sister Michelle how to get me from my bed to my wheelchair
using a Hoyer Lift. I hope you appreciate the next time you "jump"
out of bed!